Turning data into
Big Innovations for Improving Transplant Patient Outcomes
We work in many ways to make a difference, but our strategic process is clear. Our innovation starts with data. What we learn through big data analysis allows us to prototype diagnostic and research tools in our lab, predict clinical processes, build software and tools to aid in drug development and help patients, and create meaningful educational resources.
Learning Through Data
Through our many collaborations, including our largest - Multicenter Transplant Alliance consortium, we are gathering data and use this data to discover a new clarity of allograft rejection and failure. Bringing a very large number of patients and an even larger number of data points into one system, we are able to use big data science to model, learn, and advance the innovation and discovery process in transplantation.
Patient Reported Outcomes and Medication Adherence Research
We work with transplant patients to build a better medication and a better care model for transplant. As we develop tools to assess the burden of transplant and other patient reported outcomes, we hope to improve the rates of medication adherence. In addition, we understand that life after transplant is not easy. Transplant patients experience bad days and even bad weeks. Overall, all medications in transplant need to be discussed and we need to find new options that better fit the patients. We are developing clinical trials and new tools to revolutionize patient reported outcomes and medication adherence
Data Coordianting Center of Transplant Registries
From "big data", we extract new knowledge that is not always obvious. Listed below are research registries that we are running right now. Check back often, as we will be releasing details of additional projects we are working on.
Intestinal Failure Registry
We host the Intestinal Transplant Registry (IFR). The mission of the IFR is to track and understand the outcomes related to intestinal failure in order to support new efforts and improve outcomes for people with intestinal failure. This registry began in 2018 and will continue to grow in the upcoming years We hope we can learn and work together to make significant improvements in intestinal failure.
To access to the IFR Redcap portal
International Intestinal Transplant Registry
We host the International Intestinal Transplant Registry (ITR). The mission of the ITR is to provide data on the outcomes of intestine transplantation to the international intestine transplant community in order to support their efforts and improve outcomes as well as inform policy development. We are also working with the Intestinal Rehabilitation and Transplant Association (ITRA) of the Transplantation Society to make the registry even better.
To access to the ITR Redcap portal